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Contributing the patients' Contributing the perspective of patients and other affected persons

The key questions in our assessments and reports are always whether an examination or treatment method prolongs life, alleviates symptoms or complications and improves quality of life. Against this background and on a legal basis, we regularly include people affected by diseases (patients and relatives) in the preparation of our reports. This is done indirectly via the spokesperson of the G-BA's Coordination Committee for Patient Involvement , who is in contact with self-help groups and patient organizations throughout Germany and who searches for and arranges suitable partners for IQWiG's work (indirect contact). In addition, patients and other affected persons can also contact us directly at various points in our work to contribute their views (direct contact).

The following fields of work exist for patients and other affected persons to actively participate in IQWiG's work:

Benefit assessment of drugs and non-drug interventions

  • Comment on preliminary reports in the benefit assessment of drugs and non-drug interventions and on report plans in the benefit assessment of drugs.
    Direct contact: Submit a written comment (Submitting comments)
  • Discuss patient-relevant outcomes with us, such as health-related quality of life, symptoms or complications.
    Indirect contact: Patients are contacted via the spokesperson of the G-BA's Coordination Committee for Patient Involvement.

Early benefit assessment of drugs according to AMNOG

ThemenCheck Medizin (HTA reports suggested by members of the general public)

  • For “ThemenCheck Medizin”, ask your question to the scientific community by submitting a proposal for the assessment of an examination or treatment procedure.
    Direct contact: For “ThemenCheck Medizin”, enter your question and any background information online in a form .

Informedhealthonline.org

  • Get involved in the development of health information.
    Indirect contact:IQWiG determines the experiences, wishes and information needs of patients and other affected persons through discussions, user testing of the information and by collecting reports on experiences. Patients and other affected persons are contacted via self-help groups, patient universities and other partners. If you have any questions, please use our contact form.
  • Review, assess and comment on IQWiG's health information and suggest topics for further health information.
    Direct contact: please use our contact form.

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